I can't believe I got Grady smiling on camera - I think he likes the shirt he is wearing!

Not so sure about being bundled up.

Doesn't this beat the bonnet they put on him last week?


I took a couple pictures of Colby tonight.
This is the one he chose for the blog.

I was able to drag myself out of bed this morning to get to the 9:00 feed. I didn't have time for breakfast - but I made it in time for the feed - not a minute too soon either. Grady took all of his 9:00 & 12:00 feeds! He had an appointment with Dr. Boyle at 12:30, so I had to give him the 12:00 feed in the doctor's office. He did fine with it, though. Dr. Boyle is very happy with how he is doing. He said to up Grady's feeds - so now the minimum is 55 mls. but if he wants more, he can have more. Grady was very tired after making the trip to see Dr. Boyle. I had to wake him for his 3:00 feed & then he only took 50 mls. I think we are getting really close to coming home. They are talking about letting the nurses start oral feeds next week. Right now, they are not cleared to do oral feeds & so during the night they just put the feeds thru the ng tube. If he does well on around the clock feeds, they can take the ng tube out (one of the main reasons we are at rehab). Also, next week we are going to start giving Grady his meds orally. The nurses have been pushing them thru the ng tube & the transplant nurse wants him to get used to taking them orally before we leave. Keep your fingers crossed - we are seeing light at the end of the tunnel.

We had a really nice group bring dinner tonight. They were from bluemountain.com (online greeting card company based in Cleveland). I was so excited because they didn't bring pasta or tacos! We had subs, chili, salad, chips and dip, and dessert! It was delicious & they were really nice to talk to!

Ken and Colby came up this evening. It's always nice to see them! They usually wait until Friday, but Clinton's funeral is tomorrow & we are all planning on going to that. Colby doesn't understand what "died" means. He asked me if we can still talk to him or if we can go to heaven to see him. I tried to explain, but I'm not sure if he got it. We will see how tomorrow goes.

Ken is going to go to rehab for the 9:00 feed tomorrow morning. He still hasn't been cleared to feed (he's here weekends & the therapists aren't) so tomorrow he is going to be there as much as possible so he can get cleared. I don't like being the only one who can feed Grady - it makes me feel like I should be there 24/7.