I just got done playing Phrase Frenzy with Rosy, Steve & Brandon. It's a game that you can play online against other people. Of course - I whooped up on em. I think Rosy did win one game, though. It's a good thing Steve can't type fast or he would beat us everytime since he's such a genius. Mom & Jolie were up tonight. They came to see Grady for a while & then took me out to eat at a place called Yours Truly. We had a good time except that it is so cold outside we were all complaining about our toes freezing just from walking in & out of the building!

Grady continues to do well with his feeds. We are also now giving him all of his medications orally instead of thru the ng tube - hopefully the tube will be coming out soon!

We had an appointment with Dr. Boyle today. It's always a good time when we go to his office. I know that sounds crazy - most people dread going to see the doctor - but Dr. Boyle and his team are fun! They are always picking on us and each other - sometimes that's what you need in these situations. Grady is scheduled for another biopsy Monday morning at 6:30 am. If everything looks good, Dr. Boyle said that there will be no reason on his end to keep us here anymore. Yes - you read that right - we might be coming home very soon. The only catch is, we still have to get cleared by rehab to go.

I talked to one of the therapists & she said that developmentally she feels that Grady is right where he needs to be (using his adjusted age). He is tracking toys & faces with his eyes, turning towards sound, cooing and doing all of the stuff a normal 2 1/2 month old baby would do, so hopefully there will be no reason for them to keep him. The main thing is still his feeds. Also, it is their policy not to discharge anyone until all of their prescriptions are filled and checked by a doctor on staff. I have 11 prescriptions from Dr. Boyle & I should be getting 2 more from rehab. When I come home this weekend I will try to get them filled by our pharmacy (I say try because I'm not sure if they keep all of these in stock or if they will have to order them in). Hopefully, I can get them all filled and bring them back with me Sunday night just in case they let us go next week - I don't want this to be the reason we can't leave!

Here is where all of you come in: PRAY! PRAY! PRAY!

PRAY that the biopsy (procedure itself) goes well & that there would be no perforations.

PRAY that the results would show NO rejection.

PRAY that Grady continues to do well with his oral feeds.

PRAY that there would be no problems getting the prescriptions filled.

PRAY that we could come home SOON - preferably BEFORE I lose my mind!


Answers to Comments:

To answer Leah's question - I don't know why they are having trouble pulling up his blog. The only thing that I could think of is a friend of mine works for a school & they have it blocked somehow so they can't get on blogs there. Are they trying to get on at work or is it a home computer? Maybe it has to do with a firewall or something if it's a home computer - they shouldn't have to download anything that I am aware of. If anyone out there knows what the problem might be - leave it on the comments page so Leah can pass it on to them. Thanks!

Sarah & Amy - I will be in touch about the meals - thanks so much for offering.